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LETTERS FROM WAKE ROBIN FARM

Benzobuddies Revisited

This comment showed up on  a blog post I wrote a year ago, so I thought I'd move it to the top where people would have a better chance of finding it. Everything the commenter writes here rings true to me regarding the webside, Benzobuddies.org.

 

 

June 06, 2019 8:27 AM EDT

I experienced the same thing on BenzoBuddies. At first it was a great forum and others on that forum helped me through the toughest times of my withdrawal. After I healed, I thought I would pay it forward. I was doing a good job helping others and then decided to introduce outside sources of hope and encouragement. I was instantly reprimanded and when I complained, they pretty much locked down my account to where I couldn't post anything without moderator approval, nor could I Personal Message anyone. My account was for all intents and purposes...worthless and not usable. I told one moderator in particular that you need people on the site that healed to help and give hope to others. She dismissed it and said I thought I was "special" and "better than everyone else." Because I volunteered my time on the site? Needless to say I don't go on BBs any longer. Their draconian rules are only meant to stifle what they claim they are about, which is giving others hope. Too many rules, too many moderators on a power kick and too political...that's how I would sum up BenzoBuddies. Plus too many hard core people that claim they never heal when they don't tell "rest of the story." Almost all of those cases involve being poly drugged and having preexisting medical conditions prior to any type of anti-psychotic drug use.

- Igotmylifeback

 

 

Like this poster, while I was initially relieved to find the Benzobuddies site and learn that I was not along in the hell I was going through in withdrawal from Xanax, the place quickly became a negative in my life.  The nastiness shown to me by certain members and moderators was hardly conducive to healing when what is so sorely needed is kindness.

 

I right away broke the unspoken Benzobuddies rule that says it's okay to go on at length about the amazing book you're going to publish just as soon as you get well, but you mustn't actually DO it.  Apparently it's hard on the feelings of people who want to tell themselves they're going to write book.  They're enjoying collecting  posts of encouragement and admiration from others for the writing skills they're already displaying.  Actually writing a book makes them face the fact that they are NOT writing a book.

 

I had hoped the story of my eventual recovery would be helpful to others. It certainly wasn't helpful to me.  Okay, it's true, it WAS therapeutic to feel I would have my say and tell what it felt like to sit in each of these doctor's offices, but in writing out and going over and over in editing the most painful scenes of my ordeal, I really set myself up for PTSD. People who just forget may do better. But, I'm a writer; that's what I do.

 

Once my book was published, BB moderators scolded me if I mentioned it on the site.  Occasionally the moderator, Colin Moran, would talk about setting up a thread where books by members or former members could be listed.  Funny thing, that list finally went operative about two days after closed my account. I am not exaggerating.  I assumed my book would be on that list, but a fellow BB whom I'd befriended off the board told me no, it wasn't there.  When she suggested Accidental Addict be listed she was told they couldn't because I hadn't personally requested it.  Ha! How's that for a Catch-22? Because now that I was off the board, I had no way of contacting them anyway.

 

Well, nuts to them. In the end, I doubt people on the BB board are the absolute best audience for my book anyway.  So far, it's probably had more impact on people who start reading it just to check out a trainwreck story of somebody else's problems, only to find that drugs that gave me grief (Oxycodone and Xanax) are the very ones they themselves are currently taking.   

 

So, heads up! If you're taking Xanax occasionally to sleep, you may be compromising your brain.  You won't know how much until you try to go off.  Please, educate and save yourselves.

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Bitter Pill Indeed

Maybe the word is finally getting out. It's about time.  The New Yorker's April 8th edition features an article called Bitter Pill: Why do we know so little about how to stop taking psychiatric drugs?  It follows the story of a young woman named Laura Delano, who began taking prescribed psychiatric drugs in her teens and suffered her doctors' layering on of more and different drugs (19 medications in 14 years) before she finally figured out for herself what her doctors weren't telling her, that to get well, she needed to go off  the drugs, not take more.

 

I'd heard of Laura because she would be mentioned on Benzobuddies.org, a site I used to visit, where people tried to help each other wean off of the class of psych drugs known as benzodiazepines—Xanax, Klonopin, Ativan and others. She had gone public with her story on another site, Robert Whitaker's Mad in America. A Canadian benzo buddy of mine had met up with her for coffee, so,when I saw this in The New Yorker, I already knew her as a real person and I was just glad somebody was paying attention.

 

I have written before about Robert Whitaker's eye-opening book, Anatomy of an Epidemic, but it bears repeating. I bought copies for each of my kids with instructions to read cover to cover if they ever hit a point where a doctor suggested they or their family members be prescribed one of these drugs. 

 

Laura Delano says it was reading Anatomy of an Epidemic that changed her life, gave her the idea that just maybe, instead of taking more pills, she ought to be taking fewer.  It takes a long time to undo the damage these drugs can do to a person's brain, but healing is possible and she's recovering.

 

Sadly, there are many people like Laura, who have endured years of being polydrugged, and find little help or support from doctors when they try to get off.  I think my own story, detailed in Accidental Addict, and endorsed by Robert Whitaker, is probably even more common—middle-aged women who are unsuspectingly damaging their brains with doses of Xanax so small they think surely it couldn't be a problem.

 

Here's the bottom line as I see it: if you are taking prescribed antidepressants or benzos but are just  coping, not really doing well, maybe even coming up with weird new symptoms, please consider that your drug regimen might actually be your biggest problem. Please don't waste energy worrying if you must take on the label of "addict." The only question is, are you better off on these drugs or off of them? And don't rely on your doctor to have your back. His signature on the prescription pad will not save your brain.

 

Read Anatomy of an Epidemic. Check out the stories on Mad in America. Read my book.  See if any of this sounds like what you're going through and then, please, get busy saving yourself.  

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